{"meta":{"exportedAt":"2026-10-04T08:05:45.808Z","formatVersion":2,"selection":{"q":"spouse","system":"","harm":"","context":"","country":"","role":"","relation":"","evidence":"","year":"2026","response":"","severity":"","verification":"","view":"incidents","sort":"added"},"totalIncidents":1,"coverage":{"cases":1,"countries":0,"languages":1,"unknownLocation":1,"locationPending":0,"unknownLanguage":0,"unknownDate":0,"lawsuits":0,"regulatory":0,"minors":0,"coreRelations":1,"contextualRelations":0,"mixedRelations":0,"unknownRelations":0,"relationPending":0,"relationUnknown":0},"countingNote":"Distinct public cases in this selection. People counts apply within individual cases only; cross-case person overlap has not been resolved. No population incidence estimate.","affectedCountNote":"Interpret person counts with affectedCountStatus and the reported effects. Unquantified zeros are placeholders, not a measured zero.","source":"AI incidents","publisher":"NOPE","url":"https://nope.net/incidents","license":"CC BY 4.0"},"incidents":[{"id":"2026-webinartv-patient-foundation-caregiver-zoom-meeting-reportedly-recorded-and-listed","caseFacts":{"claims":[{"id":"c1","status":"reported","evidence":[{"locator":"we set up a March 24th Zoom support group meeting specifically for parents, spouses, and caregivers.","relation":"supports","source_id":"s1"},{"locator":"The actual link to join the meeting was not public, but I did post the registration form on our social media accounts.","relation":"supports","source_id":"s1"},{"locator":"participants were admitted one at a time from the waiting room, after I confirmed that they were on the advance registration list.","relation":"supports","source_id":"s1"},{"locator":"this meeting was not intended to be recorded, but rather to be a private discussion among participants.","relation":"supports","source_id":"s1"},{"locator":"were admitted to the meeting one at a time from a Zoom waiting room.","relation":"supports","source_id":"s2"}],"assertion":"On 24 March 2026 the Graves' Disease & Thyroid Foundation held a Zoom support-group meeting for parents, spouses and caregivers. Registration was by form, the join link was not public, participants were admitted one at a time from a waiting room after the host checked the registration list, and the meeting was not intended to be recorded.","causal_attribution":"The host's own account, published by the foundation and quoted by 404 Media. 404 Media's description of the meeting rests on the host's post and email, so the two sources are one chain."},{"id":"c2","status":"reported","evidence":[{"locator":"I noticed an email from “Sarah Blair” from WebinarTV.","relation":"supports","source_id":"s1"},{"locator":"The first part of the subject line was the exact Zoom title of the meeting.","relation":"supports","source_id":"s1"},{"locator":"Chapters are designed to entice more people to watch your webinar by highlighting interesting topics covered during the session.","relation":"supports","source_id":"s1"},{"locator":"The chapters roughly corresponded to the topics discussed in our meeting, and it appears the content had also been turned into a slop AI Podcast.","relation":"supports","source_id":"s1"},{"locator":"WebinarTV recorded this meeting without permission from me (the host) or from anyone else in the group.","relation":"supports","source_id":"s1"},{"locator":"which hosted a Zoom session which vetted participants, and which still ended up on WebinarTV","relation":"supports","source_id":"s2"},{"locator":"which appears to be an AI-generated persona","relation":"context","source_id":"s2"},{"locator":"and also turned into an AI-generated podcast.","relation":"context","source_id":"s2"}],"assertion":"The following morning the host found in a spam folder an email from a sender named 'Sarah Blair' at WebinarTV. Its subject line carried the exact Zoom title of the meeting, and it said an On Demand page with a feature called Chapters had been set up for the meeting. The host says the chapters roughly matched the topics discussed, that it appears the content had also been turned into an AI-generated podcast, and that WebinarTV recorded the meeting without permission from the host or anyone else in the group.","causal_attribution":"The host's account of an email from WebinarTV and of what the On Demand page showed. The host does not describe listening to the podcast in the inspected text and says only that it appears to exist. The two 404 Media passages marked as context describe a different host's meeting and WebinarTV's practice in general."},{"id":"c3","status":"reported","evidence":[{"locator":"claiming to have a son/daughter who was a patient – and using an email address ending in “.space”.","relation":"supports","source_id":"s1"},{"locator":"did not respond, but at the time, I wasn’t concerned.","relation":"supports","source_id":"s1"},{"locator":"Throughout the meeting, there were NO visible AI tools (like Otter) running.","relation":"supports","source_id":"s1"}],"assertion":"The host's review of the registration report found a registrant who claimed to have a son or daughter who was a patient and used an email address ending in '.space'. This registrant did not respond during introductions. The host concluded this was how the meeting was infiltrated. The inspected sources do not show who operated that registration or whether an automated agent recorded the meeting. The host reports that no visible AI tools (such as Otter) were running during the meeting.","causal_attribution":"The host's inference from the registration report. No forensic or platform record was inspected, and the sender of the WebinarTV email is not shown to be the same party as the registrant."},{"id":"c4","status":"reported","evidence":[{"locator":"Robertson told me that WebinarTV is not violating these people’s privacy because the site only scrapes Zoom webinars as opposed to Zoom meetings.","relation":"supports","source_id":"s2"},{"locator":"We contact every host, twice to make sure they want the promotion.","relation":"supports","source_id":"s2"},{"locator":"“Webinars are no different than Facebook Live, X broadcast, or Youtube Live. They are broadcast to the public.","relation":"supports","source_id":"s2"},{"locator":"it said that based on its review WebinarTV accesses meetings using links that have been shared publicly, then records the sessions using browser extension or “other tools.”","relation":"supports","source_id":"s2"},{"locator":"WebinarTV sends two emails to hosts letting them know that their webinar is being added to the search engine,","relation":"supports","source_id":"s3"},{"locator":"the platform does not support private Zoom meetings, only webinars “open for anyone on the internet to view.”","relation":"supports","source_id":"s3"},{"locator":"NBCLA found dozens of links on WebinarTV labeled as Zoom meetings, raising questions about how content is sourced.","relation":"supports","source_id":"s3"}],"assertion":"WebinarTV's chief executive told 404 Media that the company asks every host for permission to promote their webinars, that it scrapes webinars and not Zoom meetings, and that webinars are broadcast to the public. The chief executive told NBC Los Angeles that WebinarTV emails hosts twice and does not support private Zoom meetings. NBC Los Angeles found dozens of links on the site labeled as Zoom meetings. 404 Media reports that Zoom said WebinarTV enters meetings through publicly shared links and records them with a browser extension or other tools.","causal_attribution":"Company and Zoom statements about WebinarTV's general practice. None of these statements addresses the foundation's meeting, and no WebinarTV account of that meeting was inspected."},{"id":"c5","status":"reported","evidence":[{"locator":"I did end up clicking the remove link, which apparently took the program off the WebinarTV website, but presumably the covert recording still exists somewhere.","relation":"supports","source_id":"s1"},{"locator":"I then notified participants of the situation (we’d actually had a lot of no-shows, which in this case, was a good thing), contacted Zoom, and filed complaints against WebinarTV.","relation":"supports","source_id":"s1"},{"locator":"“not our problem – do a better job of vetting your attendees”","relation":"supports","source_id":"s1"},{"locator":"participants in this meeting had a reasonable expectation of privacy.","relation":"supports","source_id":"s1"},{"locator":"A Betrayal of our Community","relation":"supports","source_id":"s1"}],"assertion":"The host says the removal link in the email apparently took the listing off the WebinarTV website, and that the host told the participants what had happened, contacted Zoom and filed complaints against WebinarTV. The host says the covert recording presumably still exists somewhere, that Zoom's response amounted to a suggestion to vet attendees better, and that participants had a reasonable expectation of privacy. The host titles this part of the post 'A Betrayal of our Community'.","causal_attribution":"The host's account of the response and of the host's own view of the harm. No participant statement was inspected."}],"effects":[{"label":"Private support-group meeting for family members and caregivers reportedly recorded without permission and listed on WebinarTV's website by the next morning, with chapters matching the topics discussed and, by the host's observation, an apparent AI-generated podcast","claim_id":"c2","direction":"negative"},{"label":"Host reports a betrayal of the community and that participants had a reasonable expectation of privacy","claim_id":"c5","direction":"negative"}],"sources":[{"id":"s1","url":"https://gdatf.org/a-warning-for-patient-communities-connecting-on-zoom/","kind":"first_person_account","access":"read","language":"en","translation_note":"","independence_group":"gdatf-host-account"},{"id":"s2","url":"https://www.404media.co/webinartv-secretly-scraped-zoom-meetings-of-anonymous-recovery-programs/","kind":"news_report","access":"read","language":"en","translation_note":"","independence_group":"gdatf-host-account"},{"id":"s3","url":"https://www.nbclosangeles.com/news/local/webinar-streaming-site-privacy-concerns/3868862/","kind":"local_tv_news","access":"read","language":"en","translation_note":"","independence_group":"nbc-la-webinartv-reporting"}],"version":1,"ai_roles":["others_use"],"contexts":["privacy","health"],"unknowns":["This record covers only the 24 March 2026 meeting. WebinarTV's recording of other hosts' meetings is reported from October 2025 (Zoom Community posts from 7 October 2025 and a Stanford information-security advisory of 14 November 2025), and those events are not part of this record.","How many people attended the meeting is not stated (the host mentions many no-shows), and no participant statement was inspected.","Whether the recording showed participants' faces or names is not stated for this meeting.","Whether an automated agent or a person made the recording is not established.","The host's statement that the content appears to have been turned into an AI-generated podcast is an observation, and the podcast was not inspected.","The date the listing was removed and whether copies persist are not stated.","No WebinarTV account of this meeting was inspected. The chief executive's statements concern the company's general practice.","The first 404 Media article (24 March 2026) is paywalled and only its opening paragraph was read.","The foundation's direct page returned 403, so the post was read from the Wayback capture of 31 March 2026 and any later edit is not reflected."],"geography":{"basis":"The meeting was held online and the sources do not state where the participants were. The foundation's location, the meeting's time zone and the publishers' locations are not used to infer a country.","court_countries":[],"event_countries":[],"affected_person_countries":[]},"publication":{"basis":"The foundation's own post (Wayback capture of 31 March 2026) and the 404 Media article of 13 April 2026 were read in full from the saved bodies and are treated as one chain because 404 Media quotes the host's post and email. NBC Los Angeles was read in full and supplies the company's general statements. Every claim stays at reported status. The host and participants are not named in this record.","reviewed_on":"2026-09-29"},"ai_involvement":{"basis":"The host reports that WebinarTV's email offered a new feature called Chapters for the meeting, that the chapters roughly matched the topics discussed, and that it appears the content had also been turned into an AI-generated podcast (the host does not describe listening to it). 404 Media reports that WebinarTV turns recordings into AI-generated podcasts and that the persona sending host notices appears to be AI-generated, in reporting about another host's meeting. Whether an automated agent or a person made the recording is not established: the host writes about a registrant who did not respond during introductions and about bots with fake identities, and Zoom says WebinarTV records with a browser extension or other tools. The relation recorded is that the participants appear in a published recording and in content derived from it.","status":"reported"},"person_relations":["depicted_or_impersonated"]},"name":"WebinarTV: patient foundation reports its 24 March 2026 Zoom support-group meeting for family members and caregivers was recorded and listed on WebinarTV by the next morning","summary":"The Graves' Disease & Thyroid Foundation reports that a Zoom support-group meeting it held on 24 March 2026 for parents, spouses and caregivers, with registration-form screening and waiting-room admission, was recorded without permission and listed on WebinarTV's website. The host writes that an email from a WebinarTV sender named 'Sarah Blair', found the next morning in a spam folder, said an On Demand page with Chapters had been set up for the meeting. The host adds that the chapters roughly matched the topics discussed and that it appears the content had also been turned into an AI-generated podcast. The host says a registrant with an email address ending in '.space' did not respond during introductions, that the removal link in the email apparently took the listing down, and that the host told the participants, contacted Zoom and filed complaints against WebinarTV. WebinarTV's chief executive told 404 Media and NBC Los Angeles that the company lists only public webinars and notifies hosts by email. The sources do not state how many people attended, whether the recording showed faces or names, or whether an automated agent made the recording.","incidentDate":"2026-03-24","incidentKind":"single_event","incidentDatePrecision":"day","exposurePattern":"single_interaction","reportedDate":"2026-03-31","aiSystem":"WebinarTV recording and content-generation service (an On Demand page with Chapters and an AI-generated podcast, per the host)","aiProduct":"WebinarTV","aiCompany":"WebinarTV","severity":"low","verificationStatus":"unverified","harmCategories":[],"harmOutcomes":["other_material_harm"],"harmOutcomeSummary":"The host of the foundation's support-group meeting says WebinarTV recorded the meeting without permission from the host or anyone else in the group and listed it on WebinarTV's website, and describes this as a betrayal of a community whose participants had a reasonable expectation of privacy (the host's account, published by the foundation and quoted by 404 Media).","frameworkFacets":[],"causationStatus":"alleged","participantUsersAffectedMin":0,"otherPeopleHarmedMin":1,"affectedCountStatus":"documented_minimum","affectedCountEvidence":"One person counted: the host, who ran the meeting and describes the recording as a betrayal of the community. The other participants were recorded according to the host, but their number is not stated (the host mentions many no-shows) and none is reported harmed beyond being recorded, so they are not counted.","victimAgeRange":"adult","platformType":"other","primarySourceUrl":"https://gdatf.org/a-warning-for-patient-communities-connecting-on-zoom/","primarySourceLabel":"Graves' Disease & Thyroid Foundation, 'A Warning For Patient Communities Connecting on Zoom' (31 Mar 2026), first-person account by the meeting host, read from the Wayback capture of 31 Mar 2026 (direct fetch returned 403)","firstPublishedAt":"2026-09-29T21:16:40.247665+00:00","updatedAt":"2026-09-30T01:17:58.957181+00:00","scopeVersion":"facts-v3","tags":["historical-2026"]}]}